Polycystic Kidney Disease (PKD) Foundation - The mission of the PKD Foundation is to: "Promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for Polycystic Kidney Disease and improve the lives of all it affects.      (800) -753-2873

National Kidney Foundation -  Seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. (619) 521-5878